A Stranger Filmed Her on the Train. TikTok Users Decided She Had Monkeypox.
With little government guidance on a fast-spreading virus, a new form of social-media vigilantism has emerged.
This is really messed up
Lilly Simon, a 33-year-old in Brooklyn, does not have monkeypox. She does have neurofibromatosis type 1, a genetic condition that causes tumors to grow at her nerve endings. Those tumors were filmed surreptitiously by a TikTok user while Ms. Simon was riding the subway on a Thursday in late July during her commute.
In the video, Ms. Simon is sitting on the train wearing shorts, a T-shirt and a leaf-patterned mask. She is looking at her cellphone, unaware she is being recorded.
The video was later posted to TikTok with a monkey emoji and a question mark laid on top, appearing to indicate Ms. Simon might be riding the subway with an active case of monkeypox, the virus recently declared a global health emergency by the World Health Organization.
In the TikTok video, the person recording zooms in on Ms. Simon’s arms, legs and ankles, where her small tumors appear as raised bumps on her skin. As a child, Ms. Simon said she was called a “leper” and her elementary school classmates would joke about her having smallpox.
She made a response on Tik Tok herself
“The tumors are benign, but they are still all over my skin and give me a lot of health complications, both physical and mental,” Ms. Simon says in her video. Speaking with The New York Times, Ms. Simon added that she was diagnosed at the age of 8, has undergone multiple surgeries and has tumors growing in her brain and eyes. There currently is no cure for neurofibromatosis type 1. It is not contagious.
god i try to not think about it too much because i’d be reluctant to go anywhere but i really don’t like the idea that i could be filmed on the subway and analyzed for someone else’s entertainment while just minding my own business. seems like we should/could be more conscious about respecting others in public space without necessarily looking at it through the lens of legality
The tik tok user fuckinfrass already deleted his account. For the better.
Wonder if you can sue the tik tok poster for defamation and recording without consent to profit
What the hell is wrong with people just assuming someone’s skin condition.
Fed needs to get off it's ass an band TikTok already. It's Chinese spyware and it's rotting away the country one video at a time.
Not a lawyer but I feel that if libel laws exist for any reason, it's this. You can film someone in public, I don't think you should be able to film someone in public, imply that they have communicable disease which has been deemed a global emergency, and then post that implication for thousands of people to comment on. This should be a civil case in my view, and even if it is an incredibly small suit, it would be worthwhile to set precedent. If you fuck with someone's life like this, you should be held accountable.